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West Dunbartonshire Epilepsy Support Group – Eplilepsy Awareness Day – 13th Dec 2014

December 12, 2014

HELLO from West Dunbartonshire Epilepsy Support Group and thank you to Dumbarton Football Club, the Sonstrust and Police Scotland for helping us to co-ordinate our Awareness Raising Session at the Dumbarton v Raith Rovers match on Saturday 13th December 2014. 

We’ve had Purple Cards printed with some details of the group, a couple of helpful website links and the stories of two of our members. The plan is that we will give every spectator a card and, as the players take to the pitch, there will be an acknowledgment of our campaign to raise awareness of Epilepsy at which point we’d like everyone to hold up their card creating a sea of purple!

We’ve asked the local press along to photograph the event and to do a follow-up story.

Two Epilepsy charities, Epilepsy Scotland and Epilepsy Connections, have provided us with some leaflets which explain more about epilepsy and these will be available at refreshment points etc.

Epilepsy affects people in many different ways. In most cases, it can be managed with adequate medication which allows people to continue to work, study and enjoy everyday life. For some though life is more difficult, particularly if they have seizures which leave them injured or tired out. There are over 40 different types of seizures ranging from staring, to unusual or rapid movements. Not everyone falls down, some people wander away when in a seizure so you could imagine this makes life very difficult.

The group meet once a month (details below) to support each other and are always open to new members.

We arrange speakers and visits from Telecare Alarms, Welfare Rights and have had Awareness Sessions ourselves on epilepsy – would it surprise you to know that most people with epilepsy don’t know what a seizure looks like!

West Dunbartonshire Epilepsy Support Group

Meets on the third Thursday monthly

10am – 12noon in the upstairs meeting room in The National Park HQ, Carrochan Way, Balloch, G83 8EG

WHAT WE’VE BEEN DOING IN THE PAST YEAR:

  •  We’ve written to every football club in Scotland and loads of them have expressed an interest in doing an event like the one planned for Saturday.
  • We’ve worked closely with Scottish Fire & Rescue and Police Scotland. In conjunction with Epilepsy Connections, we are running a pilot in which police and fire officers attend information sessions about epilepsy and how to recognise a seizure. There are simple and practical things the services can do if they have information in advance.
  • Clydebank College, now known as West College Scotland are helping the group to design a logo. When a couple of the members visited the Visual Communication Department to speak to the art students and mentioned the football campaign, their lecturer brought in the photography students as they are keen to take photos on Saturday. This will be built into their Graphic Communication module next session.
  • Gil Paterson MSP raised a motion in the Scottish Parliament to celebrate Purple Day, a day of celebration and awareness raising created by a nine year old Canadian girl in 2008 when she was diagnosed with epilepsy and felt isolated. Both Gil and Jackie Baillie MSP support the work we are undertaking with emergency services to develop awareness of the condition.

Useful Websites:
www.epilepsyconnections.org.uk
www.epilepsyscotland.org.uk

 

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